I am delighted to announce that Amanda Windom has joined my firm. She is a former manager of a day care center and a parent of child with special needs. She brings a great deal of energy to the firm and will be assisting me on cases, advocating at meetings and as can be seen above, writing wonderfully new blog posts.
Here is the Other Side of the Autism-Mercury Debate-Post #7
As many parents with children with autism know, a case is currently pending before the U.S. Court of Claims to adjudicate the causality between mercury and autism. This case may go on for years. Here is a science blog that presents the counter point, that mercury does not cause autism. Warning this material may be hard to read but it is important to understand the science which opposes the linkage between mercury and autism.
Students with Special Needs Are Wilted Lettuce and Rotten Tomatoes ? by Daunna Minnich
I have not found much time to post blogs recently because of IEP season and my impending office move. My electronic friend and loyal reader and commentator on this blogsite, Daunna Minnich, has come to my rescue with the following blog. She puts a big spotlight on another example of school people publicly sharing their real feelings about students with special needs, and the truth is not pretty.
Daunna Minnich is a guest author for the blog and a special education advocate in Palo Alto, California. A former teacher, she is mother of two teenagers with special needs. She derives a lot of satisfaction from helping parents find their way through the special education maze via an online education forum, which she helps moderate for the Juvenile Bipolar Research Foundation and via a hotline sponsored by the Community Advisory Committee (CAC) for Special Education in her school district. Deeply committed to the work of the CAC, which she chaired for three years, Daunna enjoys advocating directly with school board members and administrators, writing articles for the CAC newsletter and organizing monthly parent education programs. She never has enough time for all the ideas that pop into her head.
NYC Whisteblower Law Passed Will Face Veto
New York City passed an ordinance that would offer legal protections to school staff if they whistle blow on illegal practices in schools. However, Mayor Bloomberg has indicated that he will veto this law claiming that it would give teachers and other staff a tool to hold over administrative staff.
It would seem a simple matter of legislative draftsmenship to either not allow any protections if the charges have no reasonable basis, or to build in other legal penalties if the law was abused. There are other whistle blower acts that could be used as a model.
Under the mayor’s analysis, the best way to improve schools would be to keep everything in-house not subject to legal outside scrutiny. So much for transparency in governance and Justice Brandeis’ dicta that "Sunshine is the best disinfectant." Perhaps as one reader who commented on a earlier post on this topic, whistleblowing protection will become a matter of Federal law; it certainly is needed.
New York City Law Would Protect Whistleblowers
The City Council of New York is considering an ordinance which would protect teachers and other personnel from firing or harassment if they blow the whistle on illegal activities in school. The fact that such legal protections are needed is a sad comment in itself. The reality is that I have seen directly or indirectly school staff who were punished or fired for doing that which is right for a child but against the system. The legal protections for school staff can be very lacking so laws like this are in fact quite necessary. Maybe after this ordinance takes effect and other cities follow suit, it will be ok to "take a position against the family."
Special Education Not Draining Schools
It has been readily apparent to me that special education has not been the drain on the school systems that administrators and the media claim. Finally there is a data-driven research paper from the conservative Hoover Institute that bears out the facts of the costs for special education. The results are startling only in that the data finally drives a stake in the heart of the anecdotal and fantastic claims that special education and parents of children with special needs are ruining the education system for "the rest of us." The bottom line conclusion that I draw from this report is that there is a core prejudice and bias against children with special needs that has not been overcome in the generation that IDEA has been in existence. The media and lobby groups for schools tend to perpetuate ugly myths to the detriment of students with special needs. Well, here is the data to fight the unfounded claims once and for all.
State Rankings of Mental Health Services
The National Alliance for the Mentally Ill ("NAMI") has published a national survey ranking the funding of mental health systems in the 50 states. The results are sobering:
"NAMI presents this first comprehensive state-by-state analysis of mental health care systems in 15 years. Every U.S. state has been scored on 39 specific criteria resulting in an overall grade and four sub-category grades for each state. The national average grade is D. Five states receive grades in the B range. Eight receive Fs. None received As. "
Each of the rankings includes urgent action statements needed in your state, My great state of Illinois received a grade of F and ranked 44th for suicides and near the bottom in per capita spending. This kind of data should be used as a basis for a legislative agenda. In the special education arena, hearing officers should be made aware of this stark lack of services making it that much more urgent that students receive as much as possible through their IEPs to address mental health issues. No hearing officer or for that matter school personnel should have the false impression that "out there" services are well funded and available. This survey shows that is abundantly not the case.
Wholesome Food to Address ADHD
There was a recent medical lecture in Alberta Canada on research which indicates that eating wholesome and nutritious foods can have profound effects on children and adults with ADHD. This link contains a video clip from the lecture.
Parents Fight for Continued Use of Electro-shock
A Chicago couple with an adult son with autism has been fighting for years to continue using electro-shock, as a means of behavioral modification. The parents, Fran and Robert Bernstein, claimed that a jolt from a cattle prod applied to their son has a calming effect. The Hot Shot Power Mite is capable of delivering 4500 volts of electricity. Electric shocks of much lesser intensity can have severe physical and emotional effects and can be fatal. I know that this couple believes they know what they are doing and it is for their son’s best interests, but the reality is that severe injury or death could result, albeit accidentally.
FDA Issues New Warnings for Common ADHD Medications
The FDA has issued new warnings for many of the medications prescribed to treat some of the common symptoms of ADHD. Included on the list are Ritalin, Adderal, Concerta, Focalin, Strattera among others. The FDA is requiring additional drug guidance to address concerns about the following:
" reports of serious cardiovascular adverse events in patients taking usual doses of ADHD products revealed reports of sudden death in patients with underlying serious heart problems or defects, and reports of stroke and heart attack in adults with certain risk factors.
Another FDA review of ADHD medicines revealed a slight increased risk (about 1 per 1,000) for drug-related psychiatric adverse events, such as hearing voices,
becoming suspicious for no reason, or becoming manic, even in patients who did not have previous psychiatric problems.
FDA recommends that children, adolescents, or adults who are being considered for treatment with ADHD drug products work with their physician or other health care professional to develop a treatment plan that includes a careful health history and evaluation of current status, particularly for cardiovascular and psychiatric problems (including assessment for a family history of such problems)."
The bottom-line message is that under IDEA 2004 and for good sound medical reasons, decisions regarding medications should be decided in a doctor’s office not at an IEP meeting.
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