One of the hardest decisions that parents make is to seek residential placement, sometimes at a great distance from home. I regularly have clients who require residential schooling; often it is a matter of life and death. Knowing which school is the most appropriate is not easy to determine. Well, the Judge Rotenberg Center in Massachusetts is one school that parents can pass over in their consideration of residential placements. This school regularly uses electric shock treatment for behavioral modification. Apparently, recently in response to a prank caller they applied numerous shocks to 2 students. I have many students on my case load with severe behaviors I do not believe nor am I aware of credible literature which supports the effectiveness of shocks to modify behavior
Action Needed on ADA Bill Pending in Congress
ADA for parents of children with special needs may not be part of everyday concerns. When our children age out or graduate from IDEIA this will be one of the primary sources of substantive rights in the workplace and in public accomodations. Recent Court cases have greatly weakened the legal protections of ADA which can be reversed in Congress. This bill is different from the IDEIA legislation that is still pending in Congress. The following is a call for legislative action from COPAA!
From COPAA (The Council of Parent Attorneys & Advocates: http://www.copaa.org ):
Please contact Congress to support the ADA Amendments Act of 2008, H.R. 3195. The bill could come to a vote next week. This important bill will amend the ADA and Section 504 to ensure that the rights of adults and children with disabilities are protected. When Congress passed the ADA in 1990, it was intended to protect people with disabilities from discrimination. A series of Supreme Court decisions narrowed the act, holding that many people with disabilities were not eligible for the ADA¢s protections. H.R. 3195 will override them and re-establish the protection against discrimination that Congress intended. (This is the same bill that is sometimes called the ADA Restoration Act.)
If you represent an organization or disabilities group (including informal parent group), we would also appreciate it if you would write a letter to Congress on your letterhead (if you have it) and provide a copy to COPAA: govrelations@copaa.org
Please ask your Congressional Representatives to support H.R. 3195, the ADA Amendments Act of 2008. Call 202-224-3121 (TTY 202-225-1904) and ask for your Representative¢s office. You can send an email and look up your Representative here: http://www.house.gov/writerep
The bill could come to the House Floor for a vote as early as next week, so please call or email promptly. Calls are much more useful if you can make them.
H.R. 3195 IS VERY IMPORTANT BECAUSE IT WILL RESTORE EMPLOYMENT RIGHTS UNDER THE ADA AND MAKE CLEAR THAT THE SAME LANGUAGE APPLIES TO SECTION 504 OF THE REHABILITATION ACT.
Since both laws define disability the same way, the same corrective language should apply to both. Unfortunately, a few school districts began attacking the bill yesterday in the press, arguing that it should not apply to 504 to protect children in school. We need to help show that there is support for the bill.
First, the ADA Amendments Act of 2008 will protect youth with disabilities moving into the world of employment.
Courts have wrongfully narrowed the ADA and held that people with epilepsy, diabetes, intellectual and developmental disabilities, muscular dystrophy, and cancer (among many others) are not eligible for the ADA¢s protections. Studies show that plaintiffs lose 97% of ADA employment discrimination claims, mainly because they cannot meet the definitions of disability established by the Supreme Court. This is not what a bipartisan Congress intended when it passed the law. H.R. 3195 will overturn these decisions.
H.R. 3195 will ensure that people with disabilities do not lose ADA eligibility simply because their condition can be addressed with assistive technology or helped by medication. It will ensure that employees are not discriminated against because of their actual or perceived impairments. It will make clear that the ADA protects people whose disabilities prevent or severely restrict them from doing activities of central importance to most people¢s lives. H.R. 3195 will thus correct the decisions in Sutton v. United Airlines, Toyota Motor Manufacturing v. Williams, and their companion cases.
Second, H.R. 3195 will add simple conforming language applying the ADA Amendments Act of 2008 to Section 504 of the Rehabilitation Act.
Since the ADA and Section 504 define disability similarly, the same amendments should apply to both. Children and young adults with disabilities in school deserve the same protections as adults seeking employment.
When you talk or write to your Congressional representatives, it is important to make these points. H.R. 3195 will not change what most school districts are already doing to determine whether children with disabilities are entitled to 504 protections. But it will ensure that no child has the door to equal protection slammed by applying the old, outdated ADA case law to 504. H.R. 3195 will make clear that the small number of children who have inappropriately been denied 504 eligibility should receive it.
MORE DETAILED INFORMATION ABOUT H.R. 3195 and Sec. 504
H.R. 3195 is only about ELIGIBILITY for the ADA and 504. This is a different issues from whether 504 plans are effective or inadequate. It is important today to protect the rights of children to be ELIGIBLE under 504, just as adults would be under the ADA. That is what H.R. 3195 will do. Please stay focused on this.
No child should have the door to 504 eligibility slammed because of old, outdated ADA case law, that a bipartisan consensus agrees should be changed. H.R. 3195 will clarify that those children who have been inappropriately denied 504 coverage under outdated ADA-like theories are entitled to 504¢s protections. This is a relatively small number of children, but it is crucial that they be protected.
Still, it is important to emphasize that H.R. 3195 will not cause schools to face any major changes in determining IDEA eligibility. Most schools correctly find that children with a range of impairments are eligible for 504¢s protections. In general, courts considering claims from students with disabilities have generally held that those children are eligible for 504, unlike the employment decisions.
It is a myth to claim that H.R. 3195 will force school districts to accommodate large numbers of children that they would not otherwise. H.R. 3195 includes provisions to protect schools and employers against inappropriate disability claims. It is important to protect against discrimination, both in employment and at school. It appears that some school districts are unfortunately fighting the bill. The effect of excluding school districts is that some districts could begin in the future denying children with disabilities the same promise of equal protection and protection from discrimination under 504. This is wrong. Every child deserves to be free of discrimination.
Please urge your Congressional Representatives to support H.R. 3195 and keep America¢s promise to people with disabilities: children and adults. Equality of the law and justice will benefit all Americans.
Thank you,
Robert Berlow
Jessica Butler
COPAA Govt. Affairs Co-Chairs
Denise Marshall
COPAA Executive Director
Council of Parent Attorneys & Advocates, Inc.
A National Voice for Special Education Rights & Advocacy
www.copaa.org
email protectidea@copaa.org
Poor Kids Losing Out In City Schools
Recent data from the U.S. Department of Education shows that being poor is directly correlated to educational achievement. This report does not break out students with special education needs but there can not be any question that as awful as these numbers are for poor city children, they would be geometrically worse for poor students with special education needs. The question that remains unanswered is why Washington D.C. lags even when other factors are factored out. I guess before the current Prez takes his "victory lap" as the "Education President" he should look in his immediate backyard to see how many children are being left behind and will be in the future.
Psychic Vision Leads to Child Protective Services Call on Parent
I have seen school districts using calls to child protective services agencies as a means of chilling parental advocacy. Of course, these calls are couched under the heading of "doing our jobs", "better safe than sorry", and "we are mandatory reporters." All of these justifications would have more credibility if the calls were more even-handed and applied to school personnel who may have committed acts of abuse in the classroom. These claims are met with wide-eyed innocence with the administration dismissing such accusations with a blanket immunity that "school people do not commit acts of abuse." My glib answer is that school personnel do not take virtue pills in the morning and they are just as able to be an abuser as any parent. At a minimum, any call to child protective services also needs to be grounded upon a reasonable basis.
Well, one district in Canada left reason and reasonableness outside of the front door of the school. A classroom aide visited a psychic who reported that a child in her class was being abused. On this basis, the school called child protective services on a parent, who had expressed safety concerns over the handling of elopement in school. After a heart-wrenching investigation, the allegations were unfounded. Schools everywhere need to review their internal policies as to when and on what evidence they make that hotline call to child protective services. I would hope that psychic reports without more evidence would generally not fall within any school’s policies.
Illinois Autism Legislative Action Needed on May 29, 2008

you for all your hard work thus far to make SB 1900 a reality! WE ARE
ALMOST THERE! As you know SB 1900, when passed, will end insurance
discrimination against children with autism in the state of Illinois
and provide them with the access they need to evidence based, medically
necessary therapies and treatments. With your help, the bill made it
out of the Rules Committee and is scheduled for a hearing on Wednesday, May 28, 2008 at 9:00 a.m. at the Stratton Building in Springfield in Room D-1 before the Human Services Committee. If all goes well there, the bill will be scheduled for a final vote on the House Floor on May 31st.
need to demonstrate with our physical presence how important this bill
is to our community and are asking you to plan to be there in
attendance!
Teachers, Therapists, family members, neighbors, co-workers. Explain
how important this bill is for your family and ask them to take a quick
few minutes to ACT!
- *Naomi D. Jakobsson (Chair) – (217) 558-1009
- Constance A. Howard (Vice Chair) – (217) 782-6476
- *Patricia R. Bellock (Republican Spokesperson) – (217) 782-2289
- Annazette Collins – (217) 782-8077
- Mary E. Flowers – (217) 782-4207
- Al Riley – (217) 558-1007
- *Sandy Cole – (217) 782-7320
- *Elizabeth Coulson – (217) 782-4194
- *Timothy L. Schmitz – (217) 782-5457
Members with the * next to their name are already cosponsors of SB
1900. Please make sure to thank them for cosponsoring. Remember to be
polite and say thank you when contacting any legislatorâwe need their
support!
To find out who your representative is, please visit our resources page
and don’t forget, if you haven’t already to sign up for updates through
Autism Votes!
Lee Jorwic
Chapter Advocacy
Chair, Illinois
Autism Speaks
Florida Teacher Needs to be Voted Off the Island
School personnel too often have an unshakable belief in their own inherent virtue and goodness; "we are here for the children after all." I run into the falsity of this belief all too often. A prominent illustration of a total lack of virtue happened recently in a Florida classroom. A teacher in Florida allowed the classroom to vote a child, who is on the autistic spectrum, to be voted out of the class. This teacher went beyond simple mean-spiritedness or bad judgment. While the police declined to press charges, this teacher is obviously not fit to continue in this profession. She should take up any occupation that she does not have to consider other people’s feelings. I have not seen such cold and callous conduct in my first hand experience, I have seen, however, lesser examples of extreme hurtfulness and bad judgment. We all need to the ability to be self-critical of ourselves and our professions. Teachers are not immune from the bad parts of human nature.
Any interesting side-note to this story is that the vote was 14-2 to remove the student from the class. We could all learn something about compassion and standing up against peer pressure from the 2 children who voted to keep Alex Barton as a classmate.
PS the school apparently has re-assigned this teacher to non-teaching duties pending its investigation. If she had any decency she would just quit and go and work on a desert island.
IEP Strategy Checklist
Back in March, I presented to a very enthusiastic group of parents and advocates at the COPAA conference. It was a great time and for those of who can attend next year in Washington DC (in early March 2009) I strongly recommend it. COPAA is a time not only to learn a lot, it also recharges and revitalizes. For a short while, it is so wonderful to be among like-minded people and not have to defend and explain yourself.
I have been meaning to post my presentation outline on the blog but I have not stopped running since coming back from COPAA. The following pdf file was among my speaking points during the conference. Download strategy_checklist_for_IEPs.pdf I certainly hope this helps for the remaining meetings this year and for all of those meeting yet to come.
How Many IEP Team Members Does It Take To Change A Light Bulb by Lori Miller Fox
Like for many of you, now that my son’s IEP is over I can finally breathe–even
if only to hyperventilate.
The incredible stress that often leads up to and occurs during an IEP (or Infliction
of Excruciating Pain as I’ve come to call it), can only be “outpained” by the post
traumatic stress that usually follows. There are the insensitive comments that
linger in our hearts, the raised eyebrows that are burned into our memories, and
the skepticism that sneaks into our unguarded souls.
Please don’t get me wrong, we have had good, affable and sometimes even surprisingly
pleasant meetings. And of course, there are also those individuals including many school people, who have made a very positive difference in our son’s future. And for those experiences and people, I am extremely grateful.
But for those negative, blind-siding, gut-wrenching meetings, I offer some humor. Because sometimes all we can do to save our sanities, is take a chill pill, maybe along with a mild sedative, and laugh. So here’s a new twist on an old favorite to help get us all through the aftermath of those difficult days. [Feel free to comment with a few of your own].
IDEA Fairness Restoration Act Call Congress on May 6, 2008
It is time that we make our voices heard in C0ngress. The following pending bill is one in a series of measures to overturn ill conceived and damaging Supreme Court decisions that have harmed the rights of parents.
PLEASE CALL YOUR CONGRESSIONAL REPRESENTATIVES (202-224-3121)
ON TUESDAY, MAY 6, AND ASK THEM TO CO-SPONSOR THE IDEA FAIRNESS RESTORATION ACT, H.R. 4188. This bill will allow parents who prevail in due process or litigation under IDEA recover their expert witness fees. Few parents can afford the thousands of dollars needed to pay for expert testimony.
School districts use tax dollars to employ and pay for psychologists and other paid experts at IEP meetings and hearings. Parents have fewer resources and yet must bear a greater financial burden. H.R. 4188 is important to help level the playing field for the nearly 7 million children with disabilities. Introduced by Congressman Chris Van Hollen (Maryland) and Pete Sessions (Texas), it will restore Congress’ original intent and allow parents to recover their expert fees.
Over 100 disability organizations, including the Consortium of Citizens with Disabilities, Arc, Easter Seals, the Council of Parent Attorneys & Advocates, Inc., National Disability Rights Network, National Down Syndrome Society, National Down Syndrome Congress, Learning Disabilities Association, National Center for Learning Disabilities, CHADD, and others support H.R. 4188. But we need your help to get it passed.
Call to Action – Tuesday, May 6, 2008
On Tuesday, May 6, 2008, please call your Congressional Representatives (202-224-3121) and ask them to cosponsor H.R. 4188, the IDEA Fairness Restoration Act. Have friends and family members call. It will only take 2-3 minutes! Please join us for this national call-in day, May 6.
If you do not know who your Congressional Representative is, go to http://www.house.gov and put your zip code into the box in the upper left corner. (You usually only need your five digit zip code.) You can also use http://www.congress.org to look up Representatives and phone numbers. PLEASE CALL YOUR REPRESENTATIVES INSTEAD OF USING EMAIL.
It helps if you ask for the Education Aide, but you can also talk to the person who answers the phone. You can also leave a voicemail message. Tell them you are a constituent and would like the Congressperson to co-sponsor H.R. 4188, the IDEA Fairness Restoration Act. Congress needs to hear from as many parents, advocates, attorneys, and others as possible.
Please make a phone call on May 6, even if you’ve made one before. We want Congress to hear from parents and advocates for children, and one way we can make sure they hear us is to call them. If you can’t call on May 6, it’s okay to call afterwards. Ask your friends and family to call, too. Congress needs to hear from all of us!
It’s Important to Cosponsor the IDEA Fairness Restoration Act (H.R. 4188).
The IDEA Fairness Restoration Act would override the Supreme Court’s decision in Arlington Central School District v. Murphy (2006) and allow parents who prevail in due process or litigation to be reimbursed for their expert witness fees. H.R. 4188 is important to level the playing field and protect the rights of the 7 million children with disabilities.
When prevailing parents cannot recover expert costs, the playing field is neither level nor fair, and children are denied a free appropriate public education and other fundamental IDEA rights.
Hiring qualified medical, technical, and other expert witnesses can cost many thousands of dollars. Few parents can afford this high cost, putting due process out of reach for most parents, who struggle to afford what their children with disabilities need.
School districts use tax dollars to pay for psychologists and other paid experts. Parents have fewer resources and yet must bear a greater financial burden. Approximately 36% of children with disabilities live in families earning less than $25,000 a year; over 2/3 earn less than $50,000 a year.
Congress intended for parents to recover their expert witness fees in the Handicapped Children’s Protection Act of 1986. Allowing parents to recoup their expert fees simply restores Congress’ original intent.
If due process is not affordable, the IEP process becomes even more one-sided and unfair. School personnel control the IEP process and often vastly outnumber parents. When the right to due process is meaningful, it helps ensure that school districts provide appropriate educations to children with disabilities.
Most parents turn to due process and litigation only as a last resort. In 2003, the GAO reported that there were only 5 hearings per 10,000 special education students. But when parents are forced into due process, they should be able to afford expert witnesses.
Want more detailed information?
Download COPAA’s complete brochure on the IDEA Fairness Restoration Act and enabling parents to recover expert fees, http://www.copaa.org/pdf/MurphyBrochure.pdf
There is also a Spanish language version, http://www.copaa.org/pdf/MSSpanish.pdf
(Lea aqui en Espanol: Murphy y los derechos de los padres para recuperar el costo de los expertos: http://www.copaa.org/pdf/MSSpanish.pdf )
You can read H.R. 4188 here: http://www.copaa.org/news/IRFAct.html
You can read letters from over 100 disability organizations supporting H.R. 4188 here:
http://www.copaa.org/news/organizations.html
For more information about H.R. 4188 and this alert, please contact Bob Berlow and Jess Butler of COPAA at protectidea@copaa.org Together, we can make the difference and restore a balanced playing field for children with disabilities.
Communication None-0-1 by Lori Miller Fox
When I was in school, I don’t remember parents and teachers talking very much at all, maybe because it took close to five minutes to dial a seven-digit number on a rotary phone. So communication was pretty minimal: a nod at Open House, a note on the bottom of a report card, an awkward handshake at a Parent-Teacher conference.
When my son was in grade school, the spiral notebook was the way to “stay informed.” Tucked neatly in his Nike backpack, it carried notes from home to school and home again. Straight-forward, reliable, easy-to-use, the only complications with this method was legibility, fraying of pages and oh yeah, getting the teacher to read it.
In this day and age with the advent of cell phones, text messaging and instant emails, you’d think communication between parents and schools would be so clear that there’d be nothing left to discuss at an IEP meeting. So why is it that we still don’t understand each other? Here are some possible examples (all fiction, of course).
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